In March of 2009 my wife Roberta was diagnosed with a brain tumor AND Ed has been diagnosed with NLPHL, a rare form of Hodgkins Lymphoma. Roberta had GammaKnife treatment for her tumor and seems OK (Future MRI tests). Ed will have R-CHOP chemo for 5-6 months.
Wednesday, November 18, 2009
Day 1 After #6
Infusion #6 was same old, same old. Back home first night, steroids wolk me up at 2:00 AM....wide awake till 5:00 AM. Have moved around slowly all day. I'm ready for the 5-6 day steroid non-sleep grind! If that's the worst I got then HEY ! No hacking cough yet. When I went for infusion I mentioned coughing to infusion nurse and she said that another patient had been given some codiene cough syrup and it worked well. When the oncologist came by I had a list of all my malidies, including the cough. She didn't say anything, so I mentioned the nurse's reference to the codiene and asked if I could get some and she said SURE. You gotta be your own advocate!! Don't expect a specialist to tend to all of your needs automatically.
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